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prenatal diagnosis – We Need A Law https://test.weneedalaw.ca Thu, 05 Aug 2021 16:57:54 +0000 en-CA hourly 1 https://wordpress.org/?v=5.8.9 https://test.weneedalaw.ca/wp-content/uploads/2016/11/cropped-wnal-logo-00afad-1231-32x32.png prenatal diagnosis – We Need A Law https://test.weneedalaw.ca 32 32 Why Dr. Stella does third trimester abortions and the children she targets https://test.weneedalaw.ca/2020/06/why-dr-stella-does-third-trimester-abortions-and-the-children-she-targets/ Thu, 11 Jun 2020 03:01:45 +0000 https://test.weneedalaw.ca/?p=4527
by Tabitha Ewert

ultrasound detecting fetal abnormalities

Dr. Stella is one of four remaining doctors in the US who openly perform third trimester abortions. In the documentary After Tiller she is very clear that abortion results in the death of a pre-born child. Funeral arrangements are shown, how to tell your family is discussed, and Dr. Stella has no issue using the term “baby.”

Yet she defends what she does in cases of fetal abnormality, explaining “I recognize what I do. And at times I struggle and at times I don’t. But I always come back to the woman and what she’s going through. And often what life will this baby have? What will it mean to be alive with horrific fetal abnormalities?”

Dr. Stella’s concern for what the woman is going through and what kind of life the child will have are both weighty considerations.

What is the woman going through?

I can only imagine the emotional turmoil caused by those dreaded words: “I am so sorry. There is something wrong with the baby.” Sarah Williams describes in Perfectly Human her experience when her third daughter, Cerian, was diagnosed with thanatophoric dysplasia – a lethal skeletal deformity. Cerian’s chest was too small to sustain the proper development of the lungs, meaning she likely would be unable to breathe after birth.

Within an hour of delivering this devastating news at an ultrasound appointment, the consultant was suggesting dates for termination seemingly as an obvious next step. In the United Kingdom, where Sarah lived, there is a gestational limit on abortion of 24 weeks, but she learned there was no such limit for Cerian because she had a fetal abnormality.

Fetal abnormalities can be serious, like in Cerian’s case, but the exception in the UK law has also been used for treatable conditions like cleft palate. The exception also includes those with Down syndrome.  Abortion because of Down syndrome gained international notoriety after Iceland claimed in 2017 that they had eradicated Down syndrome – not by eliminating the condition, but by eliminating the people with the condition. One woman in Canada was even told that abortion was the only cure for Down syndrome.

Fetal abnormalities generally, and Down syndrome specifically, have gone from an exception in abortion laws to an expectation of abortion.

In the state of shock and grief resulting from an unexpected diagnosis, parents talk of the struggle to see their child as a person rather than a condition. The pressure from trusted medical professionals only adds to their burden. When Dr. Stella talks about being concerned about the women, is she concerned about what information was given along with the diagnosis or whether she was pressured to terminate? Does Dr. Stella ever tell a woman that she could continue her pregnancy and find the strength and support to raise a child with a disability?

What life will this baby have?

It is not just the parents that Dr. Stella is concerned about, but also “what will it mean to be alive with horrific fetal abnormalities?” Disabilities or genetic conditions unquestionably come with challenges. While many with Down syndrome live healthy, well-rounded lives, others face significant health and developmental challenges. Do challenges, pain, or suffering justify Dr. Stella’s position?

The reality is Dr. Stella does not know what life will be like for any given child. Sarah’s husband, Paul, was told that the statistical chances that his daughter would live with thanatophoric dysplasia was 1%. After questioning further, Paul discovered that statistic was based on a study of only 35 cases. Furthermore, of those 35 cases, 22 of them were terminated. We do not know what the lives of those 22 aborted children would be like.

This lack of information is an issue with many fetal abnormalities used to justify late term abortions. Brandon Bosma’s parents were told that his condition of Trisomy 18 meant he was “incompatible with life” and many with the condition are given a DNR – “do not resuscitate” – order and denied medical care. And yet, defying these labels, Brandon lives a full life as an international speaker and advocate for those living while being “incompatible with life.”

What is the quality and importance of these lives?

All this is not to minimize the very real hardships that Cerian faced and that Brandon still faces today. The question is, how do we value those who face these challenges?

The Abortion Rights Coalition of Canada draws this conclusion: “Being disabled, in and of itself, is not necessarily related to the quality and importance of life. Once born, the disabled have rights like everyone else, and very often lead full, productive lives. On the other hand,…especially the severely disabled, depend upon the care of others. Such care consumes substantial time and resources on the part of the caregiver.”

This pro-abortion organization holds up an ideal of an independent, productive, healthy person. In their view, someone with a disability might be able to mimic that ideal, giving their life quality and importance. But for the weak, the dependent, the suffering – their lives do not have the same quality or importance. By attempting to devalue pre-born children with disabilities, the pro-abortion narrative devalues all born people with disabilities. They grant that you are unable to end the life of a born child with a disability, but support doing so before she is born to avoid the sacrifice of “time and resources on the part of the caregiver.” What a tragic, ableist, and consumerist approach to humanity.

A life tragically cut short

The Abortion Rights Coalition of Canada’s last reason to allow abortion for fetal abnormalities is to avoid “much heartache and trauma, especially where a child’s life may be cut tragically short because of the illness or disability.” They point to short lives like Cerian’s who, despite evading an appointment with an abortionist, passed away shortly before her birth. They ignore that abortion would have only tragically cut her life shorter.

Not only does abortion cut that life shorter, it ends that life in a brutal fashion. Watching After Tiller you will notice that Dr. Stella explains why she does third trimester abortions, but never shows what she does. A third trimester abortion is a painful, brutal process for both the woman and the child. Dr. Stella’s concern for “what life this baby will have” needs to be juxtaposed by what death this baby will have.

Principle versus the person

Sarah was pro-life before she got the news of Cerian’s condition, but she describes the turmoil she went through deciding whether to terminate or not. The principles she held seemed insufficient when she faced the real situation. As the pregnancy progressed, however, Sarah gained strength in her faith and the call she felt to love Cerian no matter how long she had to do so. And it was that call and that perspective that carried her through.

A doctor asked Sarah, “Did you decide not to have a termination on strong religious grounds?” Sarah instinctively responded, “Cerian is not a strong religious principle or a rule that compels me to make hard and fast ethical decisions. She is a beautiful person who is teaching me to love the vulnerable, treasure the unlovely, and face fear with dignity and hope.”

Sarah saw the person Cerian was. Although Cerian did not live past her birth, never spoke to her parents, never went to school, and never had a job, Cerian was loved and valued. Sarah and her family recognized Cerian for the unique human being that she was and strove to love her every day they had with her.

What a difference it would make if we adopted Sarah’s approach as a culture. Rather than immediately offering abortion, what if doctors immediately offered to do everything to help both woman and baby. Rather than focusing on a condition, what if we affirmed the humanity and dignity of every pre-born child. What if we strove to love children like Cerian no matter how few their days, rather than tragically cutting that life short by abortion.

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New York’s extreme abortion law mimics Canada https://test.weneedalaw.ca/2019/08/new-york-extreme-abortion-law-mimics-canada/ Thu, 22 Aug 2019 01:43:48 +0000 https://test.weneedalaw.ca/?p=3781 Early in 2019, New York made headlines after passing their “Reproductive Health Act”, effectively eliminating all protections for pre-born children in that state. Even many who consider themselves pro-choice were upset at the idea of aborting a healthy pre-born baby past the point of viability.

Many in Canada were surprised by the acceptance of the law in New York, but, in a video from the Christian Association of Pregnancy Support Services (CAPPS), Dr. Laura Lewis points out that it makes New York no different from Canada. With no abortion law in Canada’s criminal code, viable babies can be aborted at any point if a doctor is found willing to do it.

New York ends protection for pre-born children

It is important to note, in the context of late-term abortion, that there is no medical reason to abort a baby in the third trimester to save the life of the mother. If health concerns arose, the baby could be delivered prematurely and cared for in the best way possible, a much different approach than deliberately killing the baby in the womb.

Dr. Lewis also stresses the caution needed in assuming the value of a human life based on a prenatal diagnosis. These diagnoses, which generally come to light later in pregnancy, are often the reason cited for choosing late-term abortion. This vastly underestimates the contributions and lives of those with disabilities, as well as ignoring the high rate of inaccurate diagnoses.

Canadians should never look at New York and feel superior. We set the example they chose to follow, of complete disregard for human life in the womb. There is no good reason for this disregard there, and no good reason for it here. That is why we continue working to change hearts and minds on the value of human life in its earliest stages, and to impress on our elected leaders their responsibility to defend children in the womb.

Read our position paper on why abortion is never medically necessary, and should never be considered health care.

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Guest post: The value of support following a Down syndrome diagnosis https://test.weneedalaw.ca/2019/03/guest-post-the-value-of-support-following-a-down-syndrome-diagnosis/ Tue, 19 Mar 2019 15:43:13 +0000 https://test.weneedalaw.ca/?p=3404 Recently, we shared a story about how a doctor and obstetrician repeatedly pressured a mother to abort her child due to her potential Down syndrome diagnosis. The positive story shared below contrasts with that, and shows what a difference there is in the experiences of Canadian women from doctor to doctor.

This illustrates why legislation surrounding the delivery of a prenatal Down syndrome diagnosis is so important. A prenatal diagnosis of Down syndrome comes with shock, as the expectations and assumptions of expecting parents are overturned. When you don’t know the person yet, the child can get lost under the diagnosis.The time, support and information given to this couple made such a difference in their experience when they received a prenatal diagnosis halfway through their pregnancy. 

This story was generously shared with us by Will & Christina Dokter after they participated in a campaign started by the Down Syndrome Association of Ontario (DSAO). The DSAO is advocating for legislation that would give support and current information to parents faced with a prenatal diagnosis of Down syndrome. It would also prevent a physician from recommending any medical procedure that perpetuates a negative stereotype of Down syndrome.

If you are an Ontario resident with a connection to the Down syndrome community, consider participating in this campaign by going here.

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We discovered that our baby boy had a heart defect at his 20-week ultrasound.  We were offered non-invasive testing for Down syndrome, which we accepted.  The results told us that our son had a 91% chance of being born with Down syndrome. This news was delivered in a neutral tone, with no apology or negativity. We met with the geneticist in London, Ontario, and she was lovely. She told us our son would do everything that typical kids do, just in his own time. She gave us resources and connected us with the local Down syndrome support group.  We were told that we had the option to abort, but it was never pushed or even encouraged. We rejected that option immediately and it was never brought up again.

Despite the fact that we are staunchly pro-life, that we believe God has a purpose and a plan, that we loved our unborn son, and that we were connected with support, it was still a scary and stressful time.  I had to accept the diagnosis before I was ready to accept the support that came with it. That took a bit of time, and for parents who are scared and vulnerable, a negative word from their doctor is tremendously powerful. I am amazed and appalled at some of the stories I’ve encountered online where parents have to fight to defend the value of their child constantly.

Once I was ready to reach out for help, other parents of little ones with Down syndrome were amazing. They were kind, encouraging and supportive, and they unanimously shared unqualified joy and delight in their special kids. I began to see that having a child with special needs is, in fact, a rare gift. Our son has opened up our eyes to things we didn’t know or see or experience before. He’s teaching his siblings empathy, joy, acceptance, appreciation for small accomplishments, thankfulness, and many other precious things.

He has been an expensive child, from a taxpayer’s perspective. He spent a week in the NICU at birth, 8 days in SickKids having his heart repaired at 5 months, endless weeks in the pediatric critical care unit dealing with complications that arose after his heart repair, and many other tests and appointments. He receives publicly funded therapy weekly, and is on a couple long-term medications which are covered as well. He will need support for the foreseeable future.  Perhaps this is one driving force behind the push to terminate these little ones – financially, they’re hard on the system.

Down syndrome prenatal diagnosis

But the question is, who determines the value of a life?  Do we only get to live if we tip the financial scales the right way?  Is this what society is saying?  Is it what they want to say?

Our son James is a fully human being, made in the image of God. His life is indescribably valuable. If he were not here, we would have lost the opportunity to learn so many things that only he could teach us. Experiencing life with an extra special person is to be enrolled in a school like no other.

People in the Down syndrome community are the first victims of the current state of affairs, but it is actually all of society that will lose if this continues. The value of human life cannot be measured on contributions, or on chromosomes. Thankfully, our story was one of support and encouragement to parent this child we were given. We want every family given an unexpected prenatal diagnosis to have that same experience.

Down syndrome prenatal diagnosis

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Prenatal Diagnosis for Autism Would Not Be Good News https://test.weneedalaw.ca/2017/06/prenatal-autism-diagnosis-not-good-news/ Wed, 14 Jun 2017 15:57:54 +0000 https://test.weneedalaw.ca/?p=2226 An article in the June 2017 National Geographic is excited about the prospect of advances in prenatal diagnostics. Extensive prenatal brain studies are occurring via MRI technology, with the goal of mapping neural connectivity to identify and understand potential developmental delays. It is thought that many long-term effects have their start in utero, so studying pre-born children is a natural step.

3D ultrasound of baby

Catherine Zuckerman, in her brief article for National Geographic, frames it like this: “Imagine if autism could be diagnosed before a baby is born. …parents would get a head start on grasping the condition – and doctors would have an opportunity to strategize care in advance.”

While that sounds incredibly positive, we know that between 70-90% of children diagnosed in utero with Down syndrome are aborted. Many of these are aborted based on a screening that is known to have up to a 50% false-positive rate. There is no reason to believe a prenatal autism diagnosis would be any different.

Prenatal screening is not used primarily for parental preparedness, but rather to decide what kind of child one wants to parent. The impact prenatal screening has on the born disabled community cannot be underestimated. One is left with the feeling that society is waiting for certain types of people to die and hoping no one else like them is allowed to be born.  Or perhaps it more like the “Not in my backyard” of criminology studies, where no one wants the halfway house or jail in their neighbourhood, but they’re fine with it existing elsewhere. This is the “Not in my family” approach, where disabilities are fine from a distance, dealt with by someone else.

Prenatal testing and research are certainly valuable, as we recognize life begins at fertilization and want to give each child their best chance at a healthy life from the earliest stages. As a pro-life community, however, let us be cautious about the potentially deadly side effects of prenatal testing, intended or not.

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